RSD/CRPS 4 a Cure

Research and Awareness Program

Posts tagged rsdsucks

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So this is why I haven’t been on. Since march 24 I have been sick but I was feeling a little better last Saturday until Monday and I went back down hill rapidly. And on top of it all I had to have blood drawn. I don’t know if all of you have trouble with needles but besides my fear of needles (I got fearful because the last time before yesterday I had blood drawn the nurse hit a nerve so I got RSD in my right arm) the RSD doesn’t take to well to needles. Luckily I had an amazing nurse but that didn’t stop the sharp pain I received. I have had off and on high fevers, cough (which prevents me from breathing for a few seconds at times), I can’t swallow w/o excruciating pain, can’t talk, and of course I’m having a full body flare. Sorry for ranting guys I’m just so sick and the RSD isn’t helping me out and my recital is in 23 days 😞 thank u to all of u who have sent me encouraging messages these past few weeks. Will post again when I start to feel better because I have literally no energy. Hopefully will be better in a couple days!! #rsd #crps #rsdcrps #rsdcrps4acure #rsdsucks #it #stunks #to #be #sick #with #RSD

So this is why I haven’t been on. Since march 24 I have been sick but I was feeling a little better last Saturday until Monday and I went back down hill rapidly. And on top of it all I had to have blood drawn. I don’t know if all of you have trouble with needles but besides my fear of needles (I got fearful because the last time before yesterday I had blood drawn the nurse hit a nerve so I got RSD in my right arm) the RSD doesn’t take to well to needles. Luckily I had an amazing nurse but that didn’t stop the sharp pain I received. I have had off and on high fevers, cough (which prevents me from breathing for a few seconds at times), I can’t swallow w/o excruciating pain, can’t talk, and of course I’m having a full body flare. Sorry for ranting guys I’m just so sick and the RSD isn’t helping me out and my recital is in 23 days 😞 thank u to all of u who have sent me encouraging messages these past few weeks. Will post again when I start to feel better because I have literally no energy. Hopefully will be better in a couple days!! #rsd #crps #rsdcrps #rsdcrps4acure #rsdsucks #it #stunks #to #be #sick #with #RSD

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Psalm 69:29 my encouragement. I have been sick all week. Didn’t even go to the studio or workout or even stretch- 😱 I know this is serious (lol anyone who knows me knows I don’t leave or call in sick to the studio unless I am truly sick) and if I’m not better by tomorrow mom is taking me back to my doctor for another strep test 😕 but she is refusing a mono test because then I would have to have a blood test and with the RSD we try to avoid needles when we can… Unless I get even more sick, I don’t think that will happen…. Hopefully though I will be better. Please keep me in your prayers! Thanks. Hope all of you are having a better week than I have had though. #RSD #CRPS #rsdcrps #rsdcrps4acure #quote #quotes #rsdsucks #motivation #inspiration #bible #verse #psalms #i #hate #being #sick

Psalm 69:29 my encouragement. I have been sick all week. Didn’t even go to the studio or workout or even stretch- 😱 I know this is serious (lol anyone who knows me knows I don’t leave or call in sick to the studio unless I am truly sick) and if I’m not better by tomorrow mom is taking me back to my doctor for another strep test 😕 but she is refusing a mono test because then I would have to have a blood test and with the RSD we try to avoid needles when we can… Unless I get even more sick, I don’t think that will happen…. Hopefully though I will be better. Please keep me in your prayers! Thanks. Hope all of you are having a better week than I have had though. #RSD #CRPS #rsdcrps #rsdcrps4acure #quote #quotes #rsdsucks #motivation #inspiration #bible #verse #psalms #i #hate #being #sick

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The little things are what count! Those last few reps with the Theraband or the final seconds on the treadmill-those little things are what make you great. Don’t settle for less. Fight this fire with fire, if the RSD is giving you trouble work out. Show the RSD who is boss! Do those little things! Make it worth your time. You can beat this if you make sure in the midst of the big things you do the small things 😉 #rsd #crps #rsdcrps #rsdcrps4acure #quote #quotes #rsdsucks #inspiration #motivation #small #things #equal #success

The little things are what count! Those last few reps with the Theraband or the final seconds on the treadmill-those little things are what make you great. Don’t settle for less. Fight this fire with fire, if the RSD is giving you trouble work out. Show the RSD who is boss! Do those little things! Make it worth your time. You can beat this if you make sure in the midst of the big things you do the small things 😉 #rsd #crps #rsdcrps #rsdcrps4acure #quote #quotes #rsdsucks #inspiration #motivation #small #things #equal #success

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So today I taught for 4 hours straight but I came early to do some therapy work and look at what I have on my feet… POINTE SHOES!! So even though I can only do really simple things (my supporting leg is not the leg that I injured) but just being in these shoes again makes me so happy even if its only for releves (aka calf raises) and balances. And of course you see all of my therapy bands, leg warmers, shoe bag, and tiger tail scattered around. Slowly but surely I am coming back! How are all of you doing in therapy? Tag me at #fightthefire so I can see your improvements! #rsd #crps #rsdcrps #rsdcrps4acure #rsdsucks #inspiration #motivation #pointe #shoes #happy #dance #ballet

So today I taught for 4 hours straight but I came early to do some therapy work and look at what I have on my feet… POINTE SHOES!! So even though I can only do really simple things (my supporting leg is not the leg that I injured) but just being in these shoes again makes me so happy even if its only for releves (aka calf raises) and balances. And of course you see all of my therapy bands, leg warmers, shoe bag, and tiger tail scattered around. Slowly but surely I am coming back! How are all of you doing in therapy? Tag me at #fightthefire so I can see your improvements! #rsd #crps #rsdcrps #rsdcrps4acure #rsdsucks #inspiration #motivation #pointe #shoes #happy #dance #ballet

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Therapy is hard. It is awful. It is painful. It is worth it though. Every time it hurts we have to crave more of that hurt, which I know sounds crazy but I have been able to use that pain to fuel my fire. Even though I am not on pointe at the moment (not because of RSD but because of an injury) when I was in training and my feet would feel like they were on fire and were gonna break off- I used that to make myself work harder. I let myself get angry at the pain. I would practically scream at the pain to go away and every time it hurt I would push a little harder to try to show the RSD that I was in charge. I just had to do it. I is therapy to challenge me and to strengthen me. How do you use therapy? What kinds of therapies are you trying out? #rsd #crps #rsdcrps #rsdcrps4acure #quote #quotes #rsdsucks #inspiration #motivation #comment #on #question

Therapy is hard. It is awful. It is painful. It is worth it though. Every time it hurts we have to crave more of that hurt, which I know sounds crazy but I have been able to use that pain to fuel my fire. Even though I am not on pointe at the moment (not because of RSD but because of an injury) when I was in training and my feet would feel like they were on fire and were gonna break off- I used that to make myself work harder. I let myself get angry at the pain. I would practically scream at the pain to go away and every time it hurt I would push a little harder to try to show the RSD that I was in charge. I just had to do it. I is therapy to challenge me and to strengthen me. How do you use therapy? What kinds of therapies are you trying out? #rsd #crps #rsdcrps #rsdcrps4acure #quote #quotes #rsdsucks #inspiration #motivation #comment #on #question

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There are always going to be days where we want to give up. The past few days I have been battling that feeling. My solous is healing very slowly (sadly) so I haven’t been fully dancing or on pointe and I found out that I might not be in my dance recital— which tore me apart. But I can’t give up. Luckily my accountability partner was like, “look regardless of what you feel you have to keep fighting. So get up and fight.” And my coach (who injured her solous last year and knows that long tedious healing process) has encouraged me to use this time to really focus on touch therapy and my relationship with Christ. But if I give up all hope is lost. So don’t give up and tonight I was doing my daily bible reading and I read this verse and I hope it will be as encouraging to you as it is to me. 
Psalm 42:5,6,8
“Why am I discouraged? Why is my heart so sad? I will put my hope in God! I will praise him again— my Savior and my God! Now I am deeply discouraged, but I will remember you… but each day The Lord pours His unfailing love upon me, and through each night I sing His songs, praying to God who gives me life.” Remember you are not alone. It is ok to feel defeated but you have to rise up. Don’t let it take over and don’t you dare ever ever give up. #rsd #crps #rsdcrps #rsdcrps4acure #quote #quotes #rsdsucks #inspiration #motivation #hope #never #give #up

There are always going to be days where we want to give up. The past few days I have been battling that feeling. My solous is healing very slowly (sadly) so I haven’t been fully dancing or on pointe and I found out that I might not be in my dance recital— which tore me apart. But I can’t give up. Luckily my accountability partner was like, “look regardless of what you feel you have to keep fighting. So get up and fight.” And my coach (who injured her solous last year and knows that long tedious healing process) has encouraged me to use this time to really focus on touch therapy and my relationship with Christ. But if I give up all hope is lost. So don’t give up and tonight I was doing my daily bible reading and I read this verse and I hope it will be as encouraging to you as it is to me.
Psalm 42:5,6,8
“Why am I discouraged? Why is my heart so sad? I will put my hope in God! I will praise him again— my Savior and my God! Now I am deeply discouraged, but I will remember you… but each day The Lord pours His unfailing love upon me, and through each night I sing His songs, praying to God who gives me life.” Remember you are not alone. It is ok to feel defeated but you have to rise up. Don’t let it take over and don’t you dare ever ever give up. #rsd #crps #rsdcrps #rsdcrps4acure #quote #quotes #rsdsucks #inspiration #motivation #hope #never #give #up

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We’re at it again!!! Becca and I are working on tons of RSD stuff!! We wrote our to do list on the mirror hahaha and we both have our working glasses on lol hit us up on kik and Instagram and facebook!! We wanna know your ideas and thoughts and love talking with you all!! #rsd #crps #rsdcrps #rsdcrps4acure #rsdsucks #hangout #text #us #all #nighter!!!

We’re at it again!!! Becca and I are working on tons of RSD stuff!! We wrote our to do list on the mirror hahaha and we both have our working glasses on lol hit us up on kik and Instagram and facebook!! We wanna know your ideas and thoughts and love talking with you all!! #rsd #crps #rsdcrps #rsdcrps4acure #rsdsucks #hangout #text #us #all #nighter!!!

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I love this!!! This is such an encouragement to me and I hope it will be to you as well. The past few days I have been very sick (again!!) and right now am actually waiting to get a throat culture to see if I can go to school and coach this afternoon. Still going to keep fighting though because God is good and I can’t let sickness get the best of me! Regardless I am deff gonna do some stretching tonight! Do what ever you can to show the RSD who’s in charge- regardless of the situation #rsd #crps #rsdcrps #rsdcrps4acure #quote #quotes #rsdsucks #inspiration #motivation #He #will #NEVER #fail

I love this!!! This is such an encouragement to me and I hope it will be to you as well. The past few days I have been very sick (again!!) and right now am actually waiting to get a throat culture to see if I can go to school and coach this afternoon. Still going to keep fighting though because God is good and I can’t let sickness get the best of me! Regardless I am deff gonna do some stretching tonight! Do what ever you can to show the RSD who’s in charge- regardless of the situation #rsd #crps #rsdcrps #rsdcrps4acure #quote #quotes #rsdsucks #inspiration #motivation #He #will #NEVER #fail

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