RSD/CRPS 4 a Cure

In my body is a burning flame,
Where Satan plays his fiery game,
I have this insane desire
To out out this never ending fire.
As I feel trapped inside this cage,
All I can pray for is a change.
With hope that in all this pain—
The fire will someday be tamed.
When I dance it’s as if I fly,
Away from the fire that doesn’t die.

~The Fire That Doesn’t Die

I wrote this for English class and right now feel like I’m trapped inside this never ending fire. I had a lot of school work and was extremely stressed and am now sick without a voice and haven’t had the energy to workout. but i have amazing friends and had a great weekend even while being sick. And as hard as sickness is and even tho I’m complaining at least I can still dance. And attempt to fly away from the fire that doesn’t die. #poem #english #rsd #crps #rsdcrps #rsdcrps4acure #quote #quotes #rsdsucks #inspiration #motivation

This is probably one of my favorite quotes. Today as I was doing my normal 3 min plank, my body was really fighting me. I have had very little energy all day but knew I had 4.5 hours to teach tonight and needed to do my plank first- or else I wouldn’t have any “spoons” left after. I was about 1/2 way through my plank when my body started shaking and I wanted to give up. But this quote inspired me to keep going. My body already hurt- fact 1. I knew that I could do a 3 min plank- fact 2. So I kept going and dropped to the floor when I hit 3 mins— but I did it, I was already in pain so what was 90 more seconds going to do? This week during therapy go that extra mile because that is when it really counts- your already in pain so why not get the satisfaction of completing a goal? 😉 #RSD #CRPS #rsdcrps #rsdcrps4acure #quote #quotes #rsdsucks #inspiration #motivation #dont #quit #makeitcount #workit

I honestly agree with that statement. Sometimes we let our “limits” define our best- in order to beat this disease we have to go-over, above, and beyond our “best”. To this day I struggle comparing what my best used to be and what it is now. There are times when I can’t concentrate on a test or get a dance move because my body burns so badly but it finally got to a point where I was like “well I may never be where I was before—but I am going to work very hard to be as good as I can.” In dance if I can’t get a move, it just fuels my fire to work harder. I will do whatever it takes to beat this. Because when you give everything to overcoming the RSD, you are doing whatever it takes and once you start doing whatever it takes… You are now and only now reaching your best 😉 #rsd #crps #rsdcrps #rsdcrps4acure #quote #quotes #rsdsucks #inspiration #motivation #do #whatever #it #takes #makeitcount

I love this quote because it holds so much truth. We can either look at our lives with RSD as a curse or a blessing. See most people have unlimited amounts of energy in their day (aka spoons) and we have limited amounts of spoons. We can either choose to compare our “lack of spoons” with others and feel terrible about ourselves or we can plan out each use of each spoon so we can spend every minute to the fullest. I am lucky, so many people waste spoons everyday and I don’t have spoons to waste so I get to spend every spoon,as I said before, to the fullest. Yes there are days when I am really upset and angry and frustrated with this disease. But I can’t change anything by just thinking about it. I have to put my plans into action. Are you going to use your spoons to the fullest? It mope around wishing for more spoons? I say this knowing that somedays I am jealous and envious of others energy but regardless that won’t change anything so I might as well use my spoons as best as I can ☺ #RSD #CRPS #rsdcrps #rsdcrps4acure #quote #quotes #rsdsucks #inspiration #motivation #agree #or #disagree?

This question makes me think so hard. It makes me question how hard I’m working in therapy. I haven’t started touch therapy but I wonder if I knew for a fact that it would work if I would just willingly jump into it. Do you guys agree? I mean I don’t exactly know what to feel while posing this question. Do you? #rsd #crps #rsdcrps #rsdcrps4acure #quote #quotes #rsdsucks #inspiration #motivation #question #never #give #up

Therapy hurts. That’s a fact. Today I started therapy with flip flops. I haven’t worn flip flops in 2 years. Ya it’s going to hurt. And it is going to be hard but it has to be done. Why? Because I know that I can beat this disease and not just in the big things but in the little things too. What are you guys doing for therapy? What are your goals? #RSD #CRPS #rsdcrps #rsdcrps4acure #quote #quotes #rsdsucks #inspiration #motivation #therapy #perseverance #flip-flops

I love this saying. Even when therapy gets hard- the true fighters get up when they feel like they can’t. And that is amazing. By the way thank you for all of your prayers and emails! I am finally feeling better. Not completely but mostly. Fevers have been gone for 6 days now and I got my voice 1/2 back on Tuesday. Also we as a RSD community need to be praying for everyone injured in the Boston bombing. My prayer is that none of them get RSD/CRPS from this tragedy. Hope you all are well and stayed safe. #RSD #CRPS #rsdcrps #rsdcrps4acure #quote #quotes #rsdsucks #inspiration #motivation #champion #finally #back #online #prayforboston

Psalm 69:29 my encouragement. I have been sick all week. Didn’t even go to the studio or workout or even stretch- 😱 I know this is serious (lol anyone who knows me knows I don’t leave or call in sick to the studio unless I am truly sick) and if I’m not better by tomorrow mom is taking me back to my doctor for another strep test 😕 but she is refusing a mono test because then I would have to have a blood test and with the RSD we try to avoid needles when we can… Unless I get even more sick, I don’t think that will happen…. Hopefully though I will be better. Please keep me in your prayers! Thanks. Hope all of you are having a better week than I have had though. #RSD #CRPS #rsdcrps #rsdcrps4acure #quote #quotes #rsdsucks #motivation #inspiration #bible #verse #psalms #i #hate #being #sick

The little things are what count! Those last few reps with the Theraband or the final seconds on the treadmill-those little things are what make you great. Don’t settle for less. Fight this fire with fire, if the RSD is giving you trouble work out. Show the RSD who is boss! Do those little things! Make it worth your time. You can beat this if you make sure in the midst of the big things you do the small things 😉 #rsd #crps #rsdcrps #rsdcrps4acure #quote #quotes #rsdsucks #inspiration #motivation #small #things #equal #success

Therapy is hard. It is awful. It is painful. It is worth it though. Every time it hurts we have to crave more of that hurt, which I know sounds crazy but I have been able to use that pain to fuel my fire. Even though I am not on pointe at the moment (not because of RSD but because of an injury) when I was in training and my feet would feel like they were on fire and were gonna break off- I used that to make myself work harder. I let myself get angry at the pain. I would practically scream at the pain to go away and every time it hurt I would push a little harder to try to show the RSD that I was in charge. I just had to do it. I is therapy to challenge me and to strengthen me. How do you use therapy? What kinds of therapies are you trying out? #rsd #crps #rsdcrps #rsdcrps4acure #quote #quotes #rsdsucks #inspiration #motivation #comment #on #question