RSD/CRPS 4 a Cure

This is for all of you dealing with this issue.

“but you look fine. • Eww.. Why is your foot purple. • You think your tired? • You cant be in that much pain— stop over exaggerating and suck it up! • Gross! Your arm is so fat and red. • You are such a baby— I only brushed against you. • it’s not that hot / cold in here seriously your such a drama queen.” these are all phrases that really hurt. Do not judge us. We are not always fine. You want to know what’s actually going on well I will tell you. We might look fine but we are hurting, burning even. Having RSD can be lonely even when you know others with RSD. RSD is isolating. •You want to know why my foot is purple? Because my nerves can’t sense temperatures right or something like that— doctors cant even explain it! • yes I am that tired. Every night I get 1-3 hours a sleep a night maybe 4. And that is not solid sleep. Every hour I am interrupted by severe burning pain. And when I do sleep a straight hour it is only because my body shuts down and guess what my nerves don’t! They keep running me on low battery. No nights sleep is a good sleep granted some nights are better than others. Try my sleep schedule for a change. • really? I’m in to much pain? I’m not even going to tell you what my pain is like because even if I did you wouldn’t be able to understand it. Think of the most painful thing you have ever felt and multiply it by 10 and set it on fire. • my arm is swollen and red. It burns and no one can do anything yet you still judge me. • you didn’t just “brush up” against me it felt like you just ripped 1/2 my skin off and then shot me and then poured gasoline on me and lit a match. • no it feels freezing in here. I don’t say it to complain it feels like I’m stuck in a blizzard that’s why I’m turning purple and blue! And if it’s to hot or my body thinks it’s to hot I sweat and get red.

Words hurt. I’m not trying to judge anyone. I just want you to know how People with RSD feel and think about when you say phrases like to them. I pray none of you ever truly understand because the only way to understand is to have it. #rsd #CRPS #rsdcrps #rsdcrps4acure #quote #quotes #rsdsucks #inspiration #judging #bullying #think #before #you #speak (Taken with Instagram at PLEASE READ!!)

Never judge. When you think your trial is harder than someone elses just remember that each person is given what they can handle and I always use the example: if I am talking to a preschooler and they for their first paper cut and think it is the most painful thing because they have never felt more pain than that then who am I to say that just because I have the most painful disease that mine is worse than that preschoolers I can’t because that is the most pain he has ever experienced never judge and always look at someone elses pain like it’s as hard as your own because to them it just might be. #rsd #crps #rsdcrps #rsdcrps4acure #quote #quotes #rsdsucks #think #before #speaking #pain #comparison #DONTjudge (Taken with instagram)